Healthcare Professionals
Long Term Conditions
Within each area you will find links to download and read the resources, which include patient information, publications, clinician training and videos.
You can access these resources by scrolling down this page and selecting the resource you require from the menu below.
Stoma Support
The video below features Megan, Sahara and Lucy, who discuss their experiences of stoma surgery, their advice to young people undergoing stoma surgery in the future, and their experiences of advising on the research. It can be a useful resource for young people awaiting on contemplating having stoma surgery, and for healthcare professionals working with this patient group, who can signpost their young patients to this resource for peer support, information and reassurance.
The video has been devised through the Stoma Support Study, led by Dr Ben Saunders, which was carried out at Keele University and funded by the NIHR School for Primary Care Research (SPCR). Researchers collaborated with young people who have inflammatory bowel disease (IBD) and a stoma, and a multidisciplinary group of healthcare professionals (HCPs), to co-design a digital intervention to support the management of distress experienced by young people after stoma surgery. The intervention comprises two components: a) a brief training package for HCPs to enhance identification and management of stoma-related distress; and b) a resource to by accessed by young people to support them to self-manage and reduce distress. Throughout the study researchers worked closely with a Patient and Public Involvement and Engagement group of nine young people with IBD and a stoma, who advised on all aspects of the research.